Note: This post was originally written by Kate Devlin, a friend of mine who helps manage the site and contributes posts about her life with multiple disabilities. When I transitioned the site to a new platform, she was not migrated over as an admin and user, and her posts now look like I created them.
I get worn out easily. It gets hard for me to moderate what I do, though.
I get back pain, from my kyphoscoliosis and arthritis. I get these very scary seizure like, but benign, movements from even unconscious stress. I get sinus issues, pretty bad. Sometimes, I get migraines.
Hence, I can’t fully live the life I usually plan to. For instance, my church had a “Harvest Night” (in place of Halloween), last night. I was looking forward to heading and maybe getting some goodies. But I was drained, and I felt God telling me to stay in.
I was upset, but I did so. I proceeded to have five episodes of those aforementioned movements. I was frustrated.
However, if I had gone to the event, I would have been even worse.
Hence, it’s a constant learning process. Accepting limitations, and using reasonable moderation, is challenging, for me. Nonetheless, it’s worth learning.
If you can relate, keep up the fight